Rosacea/Websites and Organisations

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[edit] Australian Sciences

Australian Sciences is a research company dedicated to the understanding of the mechanisms involved in rosacea and in the development of safe and long term treatments. The site contains a free booklet that gives readers a practical understanding of how heat regulation is involved in rosacea and facial flushing.

[edit] Rosacea in the UK

Myrosacea.co.uk is a comprehensive rosacea information website, created in 2008, that has been set up specifically for people in the UK. The website aims to increase knowledge of rosacea by providing information about rosacea symptoms, trigger factors and available treatments, and how a doctor can help with diagnosis and treatment.

[edit] Rosacea Support Group

The Rosacea Support Group was created in 1998 as an online resource for sufferers of rosacea. The RSG has a new blog and forum for visitors to connect with other rosacea sufferers.

[edit] Rosacea Group

RosaceaGroup.org is a non-commercial website put tegether by volunteers for the benefit of those with rosacea. It was set up in 2004 and has a discussion forum, skincare review database, physician q&a and a user contributed book. The skincare review section lists many of the well used products and has reviews by people with rosacea. The discussion forum is one of the major rosacea discussion groups.

[edit] Rosacea Archive

Rosacea-archive was created to store old forum postings and emails of all the rosacea related groups. The site had a new posts aggregator that shows the latest posts from all the groups and also has a search feature that searches over all group archives and websites.

[edit] Rosaceans, Rosacea 101, and the Rosacea Diet

The rosaceans yahoo group is the fourth largest online rosacea community. The sister site rosaceans.com is a clearinghouse of commercial information for rosacea. Brady Barrows the webmaster of the site is also the author of the books,"Rosacea 101: Includes the Rosacea Diet," and the Rosacea Diet, which are availiable to purchase from the sites.

[edit] Rosazea.net

German language support group with information pages and a forum.

[edit] Dr. Geoffrey Nase, PhD

Dr Geoffrey Nase is a Ph.D. Neurovascular Physiologist and Rosacea Research Specialist. After suffering severe rosacea himself he researched and wrote the book "Beating Rosacea - Vascular, Ocular and Acne Forms". His website is useful for patients and physicians and is kept up to date with the latest rosacea information. Dr Nase was a founding member of the Rosacea Research Foundation.

[edit] Skin Support from ZENMED™

ZENMED™ offers natural alternative treatment systems for Rosacea. All products include a 60 Guarantee. Lower your risk of inflammation, redness, and acne breakouts.

[edit] National Rosacea Society

The National Rosacea Society is a U.S. based non profit organisation whose mission is to "support rosacea research, including the awarding of research grants, and to provide educational information on rosacea to physicians, patients, and the public". The NRS been around for over 10 years and is supported by unrestricted educational grants from Galderma Laboratories, Berlex Laboratories, Stiefel Laboratories Inc and Candela corporation. The Rosacea Awareness Program was established in 1995 as the Canadian affiliate of the NRS. There are currently three staff Sam Huff (president), Dathy J Olney (treasurer) and Mary A Earhard (secretary).

Services provided:

  • A quarterly newsletter Rosacea Review
  • Research grants program
  • Classification and grading system of rosacea
  • Information for patients including pamphlets
  • Physician finder (U.S. only)
  • Information for physicians

[edit] Rosacea Awareness Program

The Rosacea Awareness Program is the Canadian affiliate of the National Rosacea Society. They were established in 1995 and funded by a educational grant by Galderma Canada.

[edit] International Rosacea Foundation

The International Rosacea Foundation (IRF) is a information website. The Better Business Bureau reliability report on Bass & Boney listed the IRF website as part of Bass & Boney (the makers of Rosacea-LTD III). There is also some confusion whether the IRF is really a non-profit organization. [1]

[edit] Rosacea Research & Development Institute (RRDi)

A 501 (c) (3) non profit corporation established for the purpose of researching rosacea. It was established on 7 June 2004. All members are volunteers and the board of directors are all rosacea sufferers. The Medical Advisory Committee are all volunteers who have agreed to advise the non profit organization on rosacea research and answer questions.

[edit] Rosacea Research Foundation

The Rosacea Research Foundation (RRF) is a former organisation that collected donations for to fund cutting-edge research and human clinical trials for rosacea. The organisation was disbanded and remaining funds given to the National Rosacea Society.

[edit] Rosacea.co.uk

This site has a database of detailed reports of responses to various rosacea treatments. The database can be filtered by treatment type (Photoderm, Botox, ETS, VBeam, Photofacial, Fotofacial, Other). The site also has a blog with all current news.


[edit] Rosacea Forum

The Rosacea Forum is a website dedicated to informing physicians and their patients about new breakthroughs in the treatment of rosacea. It is important for all rosacea sufferers be educated in the condition and understand that physician collaboration is crucial to help foster treatment. As such, the Rosacea Forum posts summaries about the latests studies performed by some of the top dermatologists in the field of rosacea.

[edit] References

  1. ↑ International Rosacea Foundation - The Mystery. An Editorial by Brady Barrows. (http://rosaceans.com/html/irf.html)
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